“Christian” returns to school tomorrow after yet another knee bleed. He fell at school right after returning from a previous knee bleed and it started again. He just never quite healed so we were cautious in sending him to school too early. While we were in the hospital last week, I called the HTC in Denver and told them that we could just not wait until April for his next appointment. Denver is our “second opinion treat our inhibitor” treatment center.
How many more bleeds would he have to endure if we waited? This has been a very difficult time as it seems he is bleeding once a week to a week and a half. We are treating each bleed aggressively with NovoSeven, but we need a plan. An aggressive plan. His inhibitor is down to 17 (hopefully its not crept up any higher) so maybe at this point Immune Tolerance is an option…I will consider just about anything because doing nothing is not working.
On Thursday we have an MRI followed by his appointment at the HTC and finally an appointment to be fit for a new brace….he has just grown out of his other one.
Flights are made, hotel and car are reserved and we will be off on another adventure. An adventure that will hopefully help to make my son’s life better.
