Before our trip to Florida, “Christian” was having a few issues and we ended up bumping up his dose of Novo from 2 mgs to 3 mgs. It seems to have really made a difference. Our fantastic Walgreens pharmacist is the one who brought up the dosing change. Apparently the European dosing is different than here in the United States, and it is being adapted more and more here. We talked to the hematologist (who is trying to hold things together through some pretty big growing pains at our HTC) and he was very agreeable.
I hate to even think about the fact that Christian has been doing so well, but he really has been! I am looking forward to his next inhibitor draw. It would sure be nice to see his numbers continue to go down.
It’s not about the numbers, it’s about living life to the fullest each day (but starting immune tolerance would sure be nice) 🙂 🙂
