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The Saga Continues

“Christian’s” knee bleed is continuing to heal and his ankle starts to swell on Sunday afternoon.  He has been off his feet in a wheelchair and he has an ankle bleed.  Spontaneous bleeds seem to be our thing. Dealing with a bleed is...

Back too Soon?

On Wednesday, January 30th, “Christian” woke up with swollen knee.  We went to get it checked out at the HTC and he was admitted to the hospital.  We were able to go home on Sunday, February 3rd with the understanding that we continued to keep...

Ugh!

Don’t you just love when you put your child with a bleeding disorder to bed and you’re thinking how grateful you are for an uneventful day?  Then when he wakes up the next morning and he can’t walk because his knee is blown up.Yes, this is life with hemophilia...

It Never Ends…

We are finally back to dosing “Christian” once a day. Monday is coming and he will be back at school (with a wheelchair for a few days)! He wakes up this morning with a lump over his eye…he fell out of bed and hit the nightstand… It just...

A New Target Joint

So much for “Christian” getting back to school after Christmas vacation…He is having a pretty significant knee bleed. Just when we thought things were going well and we were looking forward to “schedule”. And it looks like it is...