by cazmac9910 | Sep 23, 2011 | 2Bros, advocacy, Living Life
I don’t like change. It is inevitable. But I still don’t like it. We are having some pretty major issues with the deterioration of our current Hemophilia Treatment Center. It is very scary, especially when the next closest one is at least six hours away....
by cazmac9910 | Sep 15, 2011 | 2Bros, Living Life, transitions
My “Christian” brought me a surprise from school…a pipe cleaner bracelet with five beads. I wear it proudly. Not just because my sweet boy made it for me, but because a year ago he could have beaded this pipecleaner. The nerve damage done by the...
by cazmac9910 | Sep 13, 2011 | 2Bros, Living Life
Why in the world am I saying this, but since we bumped up “Christian’s” daily dose of NovoSeven from 2 mgs to 3 mgs, things have been really good. Even when his tooth fell out recently, there was not any blood. Maybe I am over reacting a bit by...
by cazmac9910 | Sep 12, 2011 | 2Bros, Living Life
As the mother of a child with hemophilia, you always dread the call from the nurse at school. What in the world happened today?! Friday afternoon, with an hour of school left, I received that call. Actually, it was the school secretary (she steps in when the nurse is...
by cazmac9910 | Sep 5, 2011 | 2Bros, Living Life
We have had a fantastic weekend! Getting things done around the house, spending time together as a family, eating some great, home-cooked meals and we went on a picnic in the mountains today (high of 62 degrees). Just to come home with a bleed. I thought his ankle had...
by cazmac9910 | Aug 31, 2011 | 2Bros, inhibitors, Living Life
Before our trip to Florida, “Christian” was having a few issues and we ended up bumping up his dose of Novo from 2 mgs to 3 mgs. It seems to have really made a difference. Our fantastic Walgreens pharmacist is the one who brought up the dosing change....
