by cazmac9910 | Jan 28, 2016 | 2Bros, advocacy, Medic Alert, transitions
When you have a young “adult,” there are certain things you have to let go. Prophy is one thing. My 19 year old, Julian, believes prophy is not necessary since he always infuses when he feels something coming on. I finally had to let that...
by cazmac9910 | Dec 22, 2013 | 2Bros, advocacy, inhibitors;hospitals
The idea of a “superhero” is that they do things that most normal people cannot do. They have super strength, x-ray vision, speed, determination… My “Christian” is a superhero. As I write this he is lying asleep in his...
by cazmac9910 | Jul 4, 2013 | 2Bros, advocacy, hospitals, inhibitors
Wham! Our lives can change in an instant.When the phone rings, the news on the other end could be a terminal diagnosis or a family member could have lost their life.You drive to the local grocery store to get a gallon of milk and be involved in an accident.You...
by cazmac9910 | Jun 26, 2013 | 2Bros, advocacy
It’s funny how life works. You plan, try to do the “right” things the “right” way, and imagine your future…then life actually happens.I never dreamed I would live in the desert of New Mexico as the wife of a pastor with two...
by cazmac9910 | Nov 15, 2011 | 2Bros, advocacy, inhibitors, intuition, Living Life
It was great to be back at the NHF Annual Meeting this year. We were not able to attend last year, so we have really been looking forward to Chicago. We had a great time, did lots of walking and enjoyed catching up with old friends and making new ones.My husband and I...
by cazmac9910 | Sep 23, 2011 | 2Bros, advocacy, Living Life
I don’t like change. It is inevitable. But I still don’t like it. We are having some pretty major issues with the deterioration of our current Hemophilia Treatment Center. It is very scary, especially when the next closest one is at least six hours away....
