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Taking Back Control

Last night “Christian” and I were on my bed having a tickle fest. All of a sudden he rolled off the bed and on his way down, hit the corner of my glass topped nightstand right between his temple and eye. I shot straight up, grabbed him and knew infusing...

Ankles

I just did a four day stint in the hospital with my “Christian.” He had an extremely bad ankle bleed. It’s his target joint. He stopped walking on Monday, May 9th and finally walked on his own on Sunday, May 15th. It was very painful. When you watch...

Is Hemophilia Ever “Easy?”

My initial thought is “NEVER!” But when you have more than one child with the same bleeding disorder (and severity), you see the differences. Sometimes one brother’s hemophilia is easier to manage than the other’s.It doesn’t make either...