by cazmac9910 | Dec 18, 2009 | gratitude, Hemophilia, Oozing
This is what our Friday’s have looked like…..after today we have a month break! Then we start a new infusion drug that is a once a month infusion for five months. Hopefully this protocol will work on Christian’s levels and do the trick.We continue to...
by cazmac9910 | Nov 16, 2009 | Children, Family, gratitude, Hemophilia, Oozing
My Christian is in the hospital, again. He has an infection in his implanted port. It’s been a weekend of keeping my three year old entertained while being alone in the hospital.When you are in the hospital out of your hometown you have to manuever well. Did I...
by cazmac9910 | Oct 2, 2009 | Children, Hemophilia, Oozing
As a mom we endure quite a bit of pain. The obvious, childbirth, watching our newborns turn into toddlers, the first day of Kindergarten, their first love breaking their heart, the drivers license, college and the list goes on.When you have a child with a chronic...
by cazmac9910 | Jul 13, 2009 | Children, gratitude, Hemophilia, Living Life, Oozing
I mentioned in an earlier post that we all have “something” in our lives that we deal with. A sick child, a broken marriage, financial problems that seem to never go away, an ill parent, a job you don’t necessarily love, or even a broken...
by cazmac9910 | Jul 7, 2009 | God's love, gratitude, Hemophilia, Living Life, Oozing
Ah, this time tomorrow I will be in my own bed, with my own pillow. We will have ordered pizza earlier in the evening (no plans to cook) and have sat on our sofa doing some major veggin out.I am sitting in the quiet, darkness of a hospital room, knowing that all is...
by cazmac9910 | Jul 3, 2009 | gratitude, Hemophilia, Living Life, Oozing
I recently wrote about intuition. I had known something was wrong with my little guy’s port and it ended up that we didn’t need to get anything checked out. It started to feel okay, so we thought all was well…and Tuesday it happened…it...
