by cazmac9910 | Jun 16, 2010 | Children, God's love, gratitude, Hemophilia, Oozing
When things are out of your hands, what do you do? Wait.We are having to wait for Christian’s port to heal so that we can use it when we leave the hospital. Otherwise, we would not be able to infuse him when needed.Patience.Something my Dad had quite a bit of...
by cazmac9910 | Jun 14, 2010 | God's love, gratitude, Hemophilia, Living Life; prayer, Oozing
After camp my life went in a different direction.I’m still not home.Last Friday the guys met me for lunch after camp in Albuquerque before I had to fly out to Wisconsin to speak at a bleeding disorders event. Christian started having a bleed and some problems...
by cazmac9910 | Jun 9, 2010 | Children, God's love, gratitude, Hemophilia, Oozing
I feel like I’ve been hit over the head with a 2 x 4.I am at Camp Sangre Valiente ( a camp for children with bleeding disorders and their siblings). I am so out of my element that it is almost too much to bear.The first day I wanted to run away! I am not...
by cazmac9910 | Apr 23, 2010 | gratitude, Hemophilia, Oozing
Today is chemo day. Me and my Christian are in the infusion suite getting his treatment. I’ll be honest…I’m getting so tired.I was complaining to my husband about the chemo….”Why isn’t it working faster? When are we going to be...
by cazmac9910 | Mar 26, 2010 | gratitude, Hemophilia, Oozing
We just received wonderful news…Christian’s blood work has come back and his inhibitor is 97.5! It has never been that low! We are waiting for it to get below 10 so we can start immune tolerance therapy so that he can use Factor 8, which is the clotting...
by cazmac9910 | Mar 19, 2010 | gratitude, Hemophilia, Living Life, Oozing
I still am stunned by what happened today.As Christian and I were leaving daycare, I was holding him, and before I knew what happened, I tripped and we both went down…him head first, to the concrete!He has a golf ball sized lump on the back of his head and it...
