by cazmac9910 | Mar 8, 2010 | Excitement, gratitude, Hemophilia, Oozing
What a privledge I had this weekend to speak to a group of parents in Montana about parenting and bleeding disorders. It was great! The audience participated and had great comments that were encouraging for each other (I was worried they wouldn’t talk…they...
by cazmac9910 | Mar 4, 2010 | Children, gratitude, Hemophilia, Living Life; prayer, Oozing
We had the shortest hospital stay ever! Less than 24 hours! Yes, it was an exhausting day, but we are home. My Christian has an infection in his port, but we are on the road to treating it and we are home!There is something I noticed at the hospital. The parents of...
by cazmac9910 | Feb 21, 2010 | Children, gratitude, Hemophilia, Living Life, Oozing
Today has been a wonderful day. My Christian and I have been “holed up” in a hotel room in Albuquerque. He has an MRI in the morning, so we stayed over the weekend. My husband and Lance came up and we hung out and had a great time.They left this morning,...
by cazmac9910 | Feb 19, 2010 | Depression, Hemophilia, Living Life, Oozing
Yesterday was not pretty. My Christian had an ankle bleed Wednesday night, so he wasn’t walking and I had to stay home to work on Thursday. I had to get both of us ready to travel to Albuquerque for his treatments Thursday evening and Friday. My Lance is...
by cazmac9910 | Jan 21, 2010 | Excitement, Hemophilia, Oozing
I am so excited! Our hematologist called today and Christian’s inhibitor levels are the lowest they have ever been! It looks like the chemo is working!All of the trips, all of the money, all of the waiting, all of the crying and doubt about whether or not we...
by cazmac9910 | Jan 15, 2010 | gratitude, Hemophilia, Oozing
My Christian has been having a rough time. He’s had a knee bleed and an ankle bleed back to back within the past two weeks. It’s been very painful for him. To see him crawling and limping just hurts my heart. I spent Wednesday morning with him…from...
