by cazmac9910 | Apr 12, 2017 | 2Bros, hospitals, inhibitors
I was in the clinic today with my mighty warrior. He is starting to transition from a recombinant Factor VIII to a plasma derivedFactor VIII. He has been doing well for a couple of years with very little bleeding, but his inhibitor is still around and his...
by cazmac9910 | Nov 28, 2013 | 2Bros, hospitals, inhibitors, Living Life
For the past five weeks hemophilia has been the focus of our lives. Yes, I have two sons with hemophilia and it is in our lives everyday, but when your son has an active bleed that will not get under control and you are in the hospital, it becomes your life. My...
by cazmac9910 | Nov 17, 2013 | 2Bros, hospitals, inhibitors, Living Life, target joints
Tonight my sweet “Christian” had some trouble with his infusion of factor and needed a dose of IV Benadryl. Unfortunately he developed a pretty serious headache and was in quite a bit of pain, so he took some Tylenol and we turned off all of the...
by cazmac9910 | Oct 22, 2013 | 2Bros, hospitals, inhibitors, target joints
When you live with a chronic condition you have to be hopeful and positive. I find that if you don’t try to find the positive despite your situation, things will always look bleak. And when you have a child with a chronic condition you not only have...
by cazmac9910 | Aug 20, 2013 | 2Bros, hospitals, inhibitors, target joints
We had such a nice breather…about 3 weeks without any bleeds. It was great, while it lasted. The thought actually went through my mind, “The first week of school is going to be great!” School starts today and “Christian”...
by cazmac9910 | Jul 27, 2013 | 2Bros, hospitals, inhibitors, target joints
On June 30th, my “Christian” was running around playing….it was the last day he wore socks and shoes …until today. Today was the first day since the 30th that my sweet, 7 year old has put both socks and shoes on and did not need the...
