by cazmac9910 | Jul 4, 2013 | 2Bros, advocacy, hospitals, inhibitors
Wham! Our lives can change in an instant.When the phone rings, the news on the other end could be a terminal diagnosis or a family member could have lost their life.You drive to the local grocery store to get a gallon of milk and be involved in an accident.You...
by cazmac9910 | Jun 3, 2013 | 2Bros, complacency, hospitals, inhibitors, Living Life
Living with a bleeding disorder in this day and age, for the most part, can be managed well…if you plan well. Bleeds never happen at a “good” time and last Friday was a perfect example.”Christian” has been doing so well with no big...
by cazmac9910 | Feb 23, 2013 | 2Bros, community, hospitals, inhibitors, target joints
Several people in the bleeding disorder community don’t understand why some people are hospitalized so often for bleeds. “Why can’t you treat the bleed at home? Why do you go to the hospital so often?” Honestly, those kind of...
by cazmac9910 | Jan 30, 2013 | 2Bros, hospitals, inhibitors, Living Life
Don’t you just love when you put your child with a bleeding disorder to bed and you’re thinking how grateful you are for an uneventful day? Then when he wakes up the next morning and he can’t walk because his knee is blown up.Yes, this is life with hemophilia...
by cazmac9910 | Oct 13, 2012 | 2Bros, hospitals
Wednesday night was one of the worst nights of my life. My “Christian” came into the hospital due to an ankle bleed on Tuesday. We could not control his pain at home. His ankle bleeds are notoriously painful….just off the charts. ...
by cazmac9910 | Oct 11, 2012 | 2Bros, hospitals
My “Christian” has been in the hospital since Tuesday and in huge amounts of pain. He has been screaming in pain “My ankle, my ankle!” He’s now on a pump with continuous morphine flowing and he still cries out in pain. The measurement of...
