by cazmac9910 | Mar 4, 2024 | 2Bros, Hemophilia, inhibitors
Published initially by Hemophilia News Today, February 28, 2024 The Marvel Cinematic Universe is part of today’s culture. Its movies take theatergoers to places never imagined. Iron Man, Thor, and Doctor Strange are a few of the characters that it brings to life, and...
by cazmac9910 | Apr 12, 2017 | 2Bros, hospitals, inhibitors
I was in the clinic today with my mighty warrior. He is starting to transition from a recombinant Factor VIII to a plasma derivedFactor VIII. He has been doing well for a couple of years with very little bleeding, but his inhibitor is still around and his...
by cazmac9910 | Feb 19, 2016 | 2Bros, inhibitors, transitions
Caeleb has had a zero inhibitor titer for 15 months, but his half-life is just over 4 hours. It needs to be at least 6 hours to consider him “tolerized.” He’s doing great and we have to stay the course with big doses of Factor...
by cazmac9910 | Oct 19, 2015 | 2Bros, community, inhibitors
One year ago yesterday (October 17th) Caeleb had his 6th port placed. It has been the best port he has ever had. His daily infusions are going well, his inhibitor is in the process of being tolerized and the best news is that he has not been in the...
by cazmac9910 | Mar 13, 2015 | 2Bros, inhibitors
One of my new favorite sites is “The Mighty.” They are encouraging people to write letters to the disease/disorder that affects the ones they love. Here’s mine.Dear Hemophilia with an Inhibitor,I didn’t know you could be so...
by cazmac9910 | Nov 28, 2013 | 2Bros, hospitals, inhibitors, Living Life
For the past five weeks hemophilia has been the focus of our lives. Yes, I have two sons with hemophilia and it is in our lives everyday, but when your son has an active bleed that will not get under control and you are in the hospital, it becomes your life. My...
