by cazmac9910 | Nov 17, 2013 | 2Bros, hospitals, inhibitors, Living Life, target joints
Tonight my sweet “Christian” had some trouble with his infusion of factor and needed a dose of IV Benadryl. Unfortunately he developed a pretty serious headache and was in quite a bit of pain, so he took some Tylenol and we turned off all of the...
by cazmac9910 | Oct 22, 2013 | 2Bros, hospitals, inhibitors, target joints
When you live with a chronic condition you have to be hopeful and positive. I find that if you don’t try to find the positive despite your situation, things will always look bleak. And when you have a child with a chronic condition you not only have...
by cazmac9910 | Sep 8, 2013 | 2Bros, inhibitors, Living Life, target joints
When I look back at this picture knowing what I know now, it breaks my heart. I couldn’t tell my “Christian” then what I know now about how he would struggle and suffer with his hemophilia…that his journey would be filled with hospitals...
by cazmac9910 | Aug 31, 2013 | 2Bros, inhibitors
Typical. School has been in session for 9 days and my “Christian” has already missed 5 of those days. Such is life for a child with an inhibitor. My husband has been with him all week at appointments in Denver with an allergist at...
by cazmac9910 | Aug 20, 2013 | 2Bros, hospitals, inhibitors, target joints
We had such a nice breather…about 3 weeks without any bleeds. It was great, while it lasted. The thought actually went through my mind, “The first week of school is going to be great!” School starts today and “Christian”...
by cazmac9910 | Jul 27, 2013 | 2Bros, hospitals, inhibitors, target joints
On June 30th, my “Christian” was running around playing….it was the last day he wore socks and shoes …until today. Today was the first day since the 30th that my sweet, 7 year old has put both socks and shoes on and did not need the...
