by cazmac9910 | Jul 18, 2013 | 2Bros, inhibitors, Living Life, target joints
I admit, I enjoy Facebook. I’m more of a “lurker” than a “poster” but I do like keeping up with folks and seeing pictures of my friends children and grandchildren. There was a picture that took my breath away yesterday. ...
by cazmac9910 | Jul 4, 2013 | 2Bros, advocacy, hospitals, inhibitors
Wham! Our lives can change in an instant.When the phone rings, the news on the other end could be a terminal diagnosis or a family member could have lost their life.You drive to the local grocery store to get a gallon of milk and be involved in an accident.You...
by cazmac9910 | Jun 20, 2013 | 2Bros, inhibitors, target joints
“Christian’s” knee has been swollen since January. Bleed after bleed early this year and it just never seems to get back to a “normal” size. He has needed to depend on his wheelchair more than I have liked, but when his...
by cazmac9910 | Jun 10, 2013 | 2Bros, inhibitors, Living Life, ports;
“Christian” has been fighting his fear of needles. But when you are seven years old, nothing seems to make it “okay” that needles must be part of your life. We typically de-access his port on Saturday and access on Sunday...
by cazmac9910 | Jun 3, 2013 | 2Bros, complacency, hospitals, inhibitors, Living Life
Living with a bleeding disorder in this day and age, for the most part, can be managed well…if you plan well. Bleeds never happen at a “good” time and last Friday was a perfect example.”Christian” has been doing so well with no big...
by cazmac9910 | May 16, 2013 | 2Bros, inhibitors, Living Life, school
“Christian” finally made it to a field trip! His class went to a local park to fly kites and have a picnic and he didn’t have any issues. I am so glad he made this trip since he missed the previous three. The great thing about seven...
