by cazmac9910 | Dec 22, 2013 | 2Bros, advocacy, inhibitors;hospitals
The idea of a “superhero” is that they do things that most normal people cannot do. They have super strength, x-ray vision, speed, determination… My “Christian” is a superhero. As I write this he is lying asleep in his...
by cazmac9910 | Mar 10, 2013 | 2Bros, inhibitors;hospitals, target joints
Even since “Christian” was diagnosed with an inhibitor back in December of 2006, we have waited for the Bethesda units to drop low enough to start Immune Tolerance Therapy to eradicate the inhibitor. On March 8, 2013, we were going to finally start! ...
by cazmac9910 | Jul 12, 2012 | 2Bros, complacency, inhibitors;hospitals
Last night “Christian” and I were on my bed having a tickle fest. All of a sudden he rolled off the bed and on his way down, hit the corner of my glass topped nightstand right between his temple and eye. I shot straight up, grabbed him and knew infusing...
by cazmac9910 | Nov 28, 2011 | 2Bros, inhibitors;hospitals, target joints
This ankle bleed has been one of the worst yet. “Christian” has been on morphine every two hours today and with the half life of the morphine being so short, his pain goes away for a very brief time then he is moaning in pain until his next dose.I...
by cazmac9910 | Aug 5, 2011 | 2Bros, inhibitors, inhibitors;hospitals
On Tuesday evening, the second IV blew.It took six sticks/pokes to start a new IV. My “Christian” broke out because of nerves. He was so upset. I can’t believe I had left. My husband was there to take over, and I hate to say it, but part of me was...
by cazmac9910 | Aug 2, 2011 | 2Bros, inhibitors;hospitals
My “Christian” is doing very well. We have even move to every 12 hour factor infusions. His incision is healing and all looks great. The only problem is that he must keep an IV in until Friday. His veins are pretty torn up and traveling home, two hours...
