Select Page

Ready for a Break

We have been enjoying a little respite from the craziness “Christian’s” inhibitor brings to our lives. His knee is doing much better, but is still swollen. I looked in his infusion log and the first knee bleed of the year started on January...

Stop! Be Still!

We don’t stop.  Our lives are filled with craziness and we just keep moving from one thing to the next.  Work is busy, the kids schedules keep us hopping and our church ministry is ongoing.  Teaching a bible study, making dinner, getting homework done….it just...

Preparation

One of my new roles at our church is head of the Worship Committee.  This committee ensures that every part of the worship experience is thought through for each service.  Are the bread and juice ready and set out on the altar, is the music playing at the appropriate...

The Saga Continues

“Christian’s” knee bleed is continuing to heal and his ankle starts to swell on Sunday afternoon.  He has been off his feet in a wheelchair and he has an ankle bleed.  Spontaneous bleeds seem to be our thing. Dealing with a bleed is...

Joy

Some people try to find joy in “things”.  Material things.  They may find joy for a moment, but not the kind of joy that lasts a lifetime.I saw joy last night as my little “Christian” went to bed with a painful ankle bleed.  I went into his...