by cazmac9910 | Sep 15, 2011 | 2Bros, Living Life, transitions
My “Christian” brought me a surprise from school…a pipe cleaner bracelet with five beads. I wear it proudly. Not just because my sweet boy made it for me, but because a year ago he could have beaded this pipecleaner. The nerve damage done by the...
by cazmac9910 | Sep 13, 2011 | 2Bros, Living Life
Why in the world am I saying this, but since we bumped up “Christian’s” daily dose of NovoSeven from 2 mgs to 3 mgs, things have been really good. Even when his tooth fell out recently, there was not any blood. Maybe I am over reacting a bit by...
by cazmac9910 | Sep 12, 2011 | 2Bros, Living Life
As the mother of a child with hemophilia, you always dread the call from the nurse at school. What in the world happened today?! Friday afternoon, with an hour of school left, I received that call. Actually, it was the school secretary (she steps in when the nurse is...
by cazmac9910 | Sep 5, 2011 | 2Bros, Living Life
We have had a fantastic weekend! Getting things done around the house, spending time together as a family, eating some great, home-cooked meals and we went on a picnic in the mountains today (high of 62 degrees). Just to come home with a bleed. I thought his ankle had...
by cazmac9910 | Aug 31, 2011 | 2Bros, inhibitors, Living Life
Before our trip to Florida, “Christian” was having a few issues and we ended up bumping up his dose of Novo from 2 mgs to 3 mgs. It seems to have really made a difference. Our fantastic Walgreens pharmacist is the one who brought up the dosing change....
by cazmac9910 | Aug 24, 2011 | 2Bros, Living Life
We are some tired puppies! Day two of theme parks completed! I was worried about “Christian” keeping up with his ankle problems, but so far so good. Roller coasters, simulated rides, Hogwarts…we are having a great time:) We sat down to dinner tonight...
