When my five year old, “Christian”, was born and diagnosed with Severe Hemophilia A, I was devastated.
My husband and I broke the news of his diagnosis to his then nine year old brother, “Lance,” who also has Severe Hemophilia A, and Lance literally started jumping up and down! My husband and I were very confused. Why was he excited?
Lance said, “When I am in leadership (counselor) at hemophilia camp, he will be a first time camper! We will be there together!
He didn’t see the pain, the numerous attempts at accessing veins, the bleeds…he automatically saw the joy.
Fast forward five years…this past Sunday evening.
Christian’s port is acting up again. Something is not right. My husband had already mixed his factor and needed to get it into Christian’s body, so the only option was to use a butterfly needle and access a vein. Something my husband had not done before on our little Christian but it is how Lance infuses his factor regularly.
You know how they both handled it? My Lance sat there and talked Christian through it. He was there to reassure him and help him not be scared.
My husband was able to focus on the infusion and not worry about Christian. On the second try…success.
It’s something only the sibling affected with the same disorder can understand.
My Lance has a compassionate heart. He loves his brother (even though they can fight like cats and dogs). They protect each other.
I pray that my children continue to see the best in every situation and in other people. And that after my husband and I are long gone, that they have a close, loving relationship and that Christ shines through their souls.
Today I Am Thankful For:
1. Tea lights
2. The $15 extra dollars I spent to get my laundry finished!
3. Having meaningful input on a conference call
4. De-cluttering
5. Negative x-rays!
