The idea of a “superhero” is that they do things that most normal people cannot do. They have super strength, x-ray vision, speed, determination…
My “Christian” is a superhero.
As I write this he is lying asleep in his hospital room…a deep sleep because of the pain medications he is taking. He has a hand that is black and blue and looks as if a truck rolled over it and a knee swollen to at least twice the size of his “good” knee.
He hurts. He has pain I cannot begin to imagine.
He has endured more pain and trauma than many adults and he is seven years old. He is not able to run well, needs a wheelchair to get down the hall at school (or risk starting a new bleed) and he has been poked by needles hundreds of times.
Despite all of the “yuck,” he always seems to have a smile on his face.
He defines strength. He defines love. He is my superhero.
Our children with bleeding disorders are special. For some reason they have this condition to live with…we will never understand “Why” and we will never be able to take it away. All we can do as parents and caregivers is love them, advocate for them and ooze compassion and understanding as they struggle. We need to help them struggle well.
