Despite spending the week of Christmas in the hospital, it was a great holiday! When you are forced to be in a single room without being able to hibernate in separate parts of your home, it’s pretty nice even with monitors buzzing and nurses coming in constantly.
October 18th was the last day my “Christian” walked. He is now able to use the walker but his knee is still bent. We went to the HTC in Denver for a good follow up after all of the bleeds he has had since October and we will be going back in February.
Several vials of blood have been sent to the CDC for some in depth studies. Once the results are back we will go back to Denver to meet with the HTC and allergist at National Jewish to devise a plan of attack.
His port has a pretty serious fibrin sheath around the base so we are not able to draw back for blood work…just push with factor. We are hoping it will hold out a bit longer and are even considering a Broviac due to Christian’s extreme needle phobia. When we have to move forward with a new port/Broviac, we have already decided that it will be in Denver.
Chronic illness never stops. But when you have the moments of eating dinner as a family at home, sleeping in your own bed, and being as “normal” as possible for a bit you are able to get re-energized and fueled up for whatever life will throw at you next.
Going to Denver for appointments was not how we wanted to spend the last few days of 2013, but we were able to have some fun, spend time together and look forward to the year to come.
I am looking forward to 2014.
To finding answers…
Experiencing results…
And living a life filled with passion, purpose and love.
And most importantly to helping my sons live empowered, fulfilling lives.
Hi, Cazandra,
I knew that Christian had been in and out of the hospital, but no idea he had been in so long this time.
I will definitely keep both boys in my prayers–along with you and Joe.
Testing seems to come early and often sometimes, doesn't it. And isn't it amazing what we can do without, that we used to think was indispensable. And how God is always there to give us courage, strength and hope when we ask. He is a great God. We get terribly tired some times, but He takes care of that too.
Most of all we hurt for our little ones, and that's when we need to be there and hold their hand while God holds ours.
Thankfully, you have a good hospital to go to in Denver.
I'll definitely keep all of you in my prayers.
Sincerely and lovingly,
Helen Covey
Not sure about all the information below this comment. Don't understand about proving I'm not a robot, etc. I'm not!!