My “Christian” is doing very well. We have even move to every 12 hour factor infusions. His incision is healing and all looks great. The only problem is that he must keep an IV in until Friday. His veins are pretty torn up and traveling home, two hours away, poses some concern. In our little town we do not have a lot of back up with nursing and are afraid to depend on one person (the nurse that helps us out is not always available).
The team decided it was in our best interest to stay in the hospital until we can access the new port on Friday. I know it is the best decision, but it sure stinks to live in the hospital. I knew the minute we would leave and get home that the IV would blow and have to turn right around and come back.
All in the name of what is best for my son.
