Blog
My blog is broken into three main categories but I touch on endless topics. To read my posts about these categories just click the buttons below.
The Fishbowl Podcast
The podcast for leaders in ministry and the world
Oozing Everyday
Thoughts on life and faith while “oozing”‘ with the light of Christ
2 Brothers with Hemophilia
The journey of two brothers with Severe hemophilia A
Pain
My "Christian" has been in the hospital since Tuesday and in huge amounts of pain. He has been screaming in pain "My ankle, my ankle!" He's now on a pump with continuous morphine flowing and he still cries out in pain. The measurement of his ankle has gone up instead...
Tears
I've shed lots and lots of tears over the past couple of weeks. It just recently hit me that my sadness was surrounding the passing of my Dad, even though it's been five years. But I was also very vulnerable because I had been pretty sick (and was really good at...
A Few Steps Back
I truly thought my "Christian" had turned the corner on his fear of needles. We've taken a few steps back.I completely lost it with him last night when he did not cooperate...not one of my better parenting moments, and when our homecare nurse came today it was a...
In a matter of minutes….
This morning I went on the early school run and took "Lance" to school. When I returned, my husband was sitting on the stairs, a pool of blood drops at his feet and Christian was in tears. He tripped going up the stairs. Yes, going up the stairs. If...
Cellcept here we come!
"Christian" is starting Cellcept tomorrow. He was on it for a brief time with no problems, but the issue was that the doctor who started him on the treatment left the HTC and we never were able to see the result of a full run of the medication.We are hoping that...
Argh!
Our trip last week to the Denver HTC was great. They really do it right over there. Dr. Manco-Johnson and her team are absolutely top notch.Yesterday I received the call....inhibitor results. It's 28. ARGH! I had a feeling it was...
HTC this week!
My "Christian" did a super job infusing Friday! He sat still and did not cry and wiggle 🙂 He was so proud of himself.I am looking forward to our trip to the Denver HTC this week. We'll have a great check up, get his inhibitor level tested and get...
Inhibitor Summit – San Diego 2012
We just returned from the Inhibitor Summit in San Diego, California. We had a great time 🙂 We made some new friends, heard a few very useful nuggets of information regarding hemophilia and inhibitors and even had an "ah-ha" moment regarding "Christian's...
He Did It!
I hope it wasn't a fluke, but my "Christian" sat completely still during his infusion on Monday! We had the iPad set up, he was playing, the Emla had been on for an hour and he was completely distracted. He said, "It didn't hurt!"I sure hope this means he...
The Perpetual Cookie Jar
I have a very difficult time buying gifts for my husband. There's not much that he wants or needs, so getting creative with gifts for birthday's and holiday's keeps me busy. Last Christmas I gave him a pretty clever gift (if I do say so myself). He loves my...
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