Blog
My blog is broken into three main categories but I touch on endless topics. To read my posts about these categories just click the buttons below.
The Fishbowl Podcast
The podcast for leaders in ministry and the world
Oozing Everyday
Thoughts on life and faith while “oozing”‘ with the light of Christ
2 Brothers with Hemophilia
The journey of two brothers with Severe hemophilia A
Precautions
My "Christian" is doing very well. We have even move to every 12 hour factor infusions. His incision is healing and all looks great. The only problem is that he must keep an IV in until Friday. His veins are pretty torn up and traveling home, two hours away, poses...
The Mind Is a Terrible Thing…..
I am sitting here in the hopsital, day number 4, and we are not leaving until Friday. I am feeling sorry for myself. Guilty for missing so much work this year (I used quite a bit of sick time for myself and my "Christian") and worried about perceptions at my work. My...
Port #4
Surgery went very well. The hardest part this time was "Christian" coming out of the anesthesia. He was extremely agitated and would not stop crying. Finally, after some more pain meds and Benadryl, things calmed down and we made it out of recovery.I think the hardest...
Why?
The eternal question of "Why do bad things happen to good people?" is a hard one to answer.There is one situation that comes to mind when I hear this question. It involves my best friend from school and the car accident that completely changed her life. Why did she go...
The Hardest Day Ever
My day with "Christian" looked like this…..Left at 6:30 am for the Hemophilia Treatment Center (2 hour drive to Albuquerque)9:00 am appointmentThe hematologist accessed Christian's port and we thought all was well (I was not able to access it the night before and my...
Being Treated Badly
I am trying to deal with being treated badly. The short story is that a doctor from our Hemophilia Treatment Center was beyond rude to our family, during a bleed with our five year old, while out of town. He judged us and reprimanded us without knowing our...
A Very Stressful Trip
We traveled to the Inhibitor Summit last week in San Francisco. It was probably one of the most stressful trips we have ever been on. "Christian" was having a slight soft tissue bleed in his hand as we were leaving town, our treatment center was not being very...
The Journey
Every day we get is a fresh start. A new journey. Maybe it ends up being an "ordinary" day filled with cooking meals, cleaning up, going to work, taking the kids to swimming lessons, reminding the kids to brush their teeth, etc. But what about when you know your day...
If you have experienced a joint bleed, read on….
I received this email and wanted to pass it along. If you have personally experienced a joint bleed, this group is looking for you.It sounds like a worthwhile project.EMAILHi!I am interested in understanding more about the experiences of hemophilia. My company is...
The Fun Begins
We started our journey with Rituximab (an immunosuppresant) in the hopes of eradicating Christian's inhibitor, back in the fall of 2009.I just received a letter from the insurance company stating that our treatment (Rituximab) in January of 2011 has been denied.The...
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