by cazmac9910 | May 22, 2016 | 2Bros, Uncategorized
My mighty warrior, Caeleb, just completed the fourth grade. For most families moving from one grade to the next with their children is not a horribly big deal. In our home this is a huge milestone this year. Caeleb’s fourth grade year has...
by cazmac9910 | May 10, 2016 | 2Bros, Uncategorized
When I read stories about people living with chronic illness I am absolutely fascinated. It’s not that the details of their illness particularly fascinate me, but it’s what I have in common with them that deeply resonates in my heart. I am the mother of two sons with...
by cazmac9910 | May 7, 2016 | 2Bros, Uncategorized
For about two years my son, Caeleb, was in a wheelchair. He was able to use a walker in the house and sometimes in his classroom, but if you have ever seen a child use a walker, it breaks your heart. I don’t know why I could handle seeing him in his...
by cazmac9910 | Apr 18, 2016 | 2Bros, Uncategorized
Just about every day, week or month can be associated with awareness. World AIDS Day, International Blood Cancer Awareness Week, Dental Health Month….and of course there are the ones that are for fun like International Talk Like a Pirate Day and National...
by cazmac9910 | Mar 5, 2016 | 2Bros, Uncategorized
March is BleedingDisorder Awareness Month. It is a month when our community puts their best efforts forward to spread awareness about the disorders that our community live with every, single day. Personally I don’t do anything different during the month of...
by cazmac9910 | Feb 19, 2016 | 2Bros, inhibitors, transitions
Caeleb has had a zero inhibitor titer for 15 months, but his half-life is just over 4 hours. It needs to be at least 6 hours to consider him “tolerized.” He’s doing great and we have to stay the course with big doses of Factor...