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Welcome to My New Bloggy Buddy!

Actually, my new bloggy buddy is my hubby, Joe!  Joe is a fantastic writer and has great perspective on raising our sons with hemophilia.  I asked him if he would like to share his stories and insights on the blog and he actually agreed :)We have a series in...

Not Yet!

Last week I received an email from the physician who is “corralling” all of the doctors involved in my “Christian’s” care.  He wanted to know how my husband and I felt about discussing adjusting Christian’s treatment and...

The Carpool Line

I never thought I would be excited to wait in line to drop off and pick my son up from school.Yes, the carpool lineā€¦.I am thrilled to be in the carpool line!A year ago my son was in the hospital and has been wheelchair bound until recently.My “Christian”...

Zero is my favorite number

Today is huge!  As of this moment, my “Christian” has severe hemophilia! Why the excitement?  His inhibitor (the bug that eats up the clotting factor he needs) is registering ZERO!  For the moment, it is gone.  No inhibitor! This...

Inhale…Exhale

It has been a long time since I have been comfortable accessing my son’s port.  For the past two years he has been dealing with PTSD and a port that just didn’t work well.  He would put up a physical fight and be in hysterics with the whole...

Lucky Number “6”

  Port #6 has arrived and is 10 days old!   Friday my husband accessed it for the first time and he said it was impossible to miss.  What a relief! We have had so many problems with “Christian’s” port and the fact that...