by cazmac9910 | Oct 13, 2014 | 2Bros, Uncategorized
Most Sunday mornings you will find me in church…but not today. My husband and I were not able to access “Christian’s” port on Saturday evening and when we spoke to the doctor on call, we decided to skip his dose of FEIBA. He was not...
by cazmac9910 | Sep 21, 2014 | 2Bros, Uncategorized
When you can touch something it’s real and reassuring. Not everything is tangible, but it is nice when it is. Children who are in and out of the hospital with chronic illnesses only know their illness as a way of life. What most of us know to be true...
by cazmac9910 | Sep 19, 2014 | 2Bros, Uncategorized
My sweet “Christian” was admitted to the hospital Sunday night because his Dad and I just could not access his port. The next couple of days were filled with IV’s and a port that had a nasty rash on the outside. Last night the IV...
by cazmac9910 | Sep 4, 2014 | 2Bros, Uncategorized
To battle my “Christian’s” allergy to factor VIII, we are slowly increasing his dosage each month (in addition to 300 mgs. of Xolair every other week).Yesterday was another big day….he tolerated 750 units of factor VIII! It sure is a slow...
by cazmac9910 | Aug 15, 2014 | 2Bros, Uncategorized
In the world of inhibitors it is easy to get fixated on numbers. Inhibitor levels are measured in BethesdaUnits (titers) and it is just about everyone’s wish to be below 10. This is the level where most doctors target to get in order to start Immune...
by cazmac9910 | Jul 20, 2014 | 2Bros, Uncategorized
Tonight we went to have dinner with friends. They grilled steaks and we had great conversation. My “Christian” was looking forward to playing with their children who are both close in age. Our friends were so thoughtful because they had...
