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A Big Realization

Sometimes you just play the cards you have been dealt the best you can.  You don’t even know the difference.  For me I don’t know if I would know what to do if I had a child without a bleeding disorder!  Both of my sons are extremely...

Relief

Four incisions and a week later and  port #5 is healing beautifully :)”Christian” developed a clot that has essentially become part of his body.  The surgeons tried to break it up and it just won’t budge.  Because of this issue...

#5 Coming Soon

 I had trouble accessing “Christian’s” port last week (while his Dad was out of town).  What started as needing help accessing turned into a dye study to check placement and we learned that the port had coiled and developed a clot. I am...

Happy Birthday

  May 22, 1962 I don’t know what life would have been like if my brother had lived.Would he have been annoyed with a little sister following him wherever he went? I like to think he could have whipped up a mean peanut butter sandwich and taken me...

A Birds Eye View

I don’t think mos people would say that they like to be stuck with needles on a regular basis.  I have heard stories of big, manly, tattooed men on the brink of tears when a needle approaches…….(To read the rest of this post visit...

The Day Has Arrived

 Thursday, April 17, 2014 is the day our family has been waiting for and working towards for months.  It is the day that our mighty warrior “Christian” receives his first dose of Xolair, a relatively new injectable drug that is used to treat...