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Struggling

My mighty warrior “Christian” is amazing.  He manages to be happy despite not being able to walk, despite missing so many days of school and even despite spending day after day in the hospital because of his bad knee. His right knee started becoming a...

To Plan or Not To Plan

The “spur-of-the-moment” gene did not get passed along to me, or anyone else in my family.  I am definitely a Type A kind of gal.  When it comes to holidays, vacations, and family dinners I love to make plans months in advance so it will be a memorable...

VICTORY!

 My mighty “Christian” has a debilitating fear of needles.  Because of this fear and the fact that he needs daily infusions, we access his port once a week and leave it accessed.  Due to the physical and emotional stress and trauma accessing...

Birthday’s

 Having a good attitude and tons of hope to start the New Year is a good thing.  And then it happens….”Mom, my knee hurts.”  Ugh.  On the evening of the 16th I knew that the pain was about to get out of control so I took...

The Best is Yet to Come

Despite spending the week of Christmas in the hospital, it was a great holiday!  When you are forced to be in a single room without being able to hibernate in separate parts of your home, it’s pretty nice even with monitors buzzing and nurses coming in...

Superheroes

The idea of a “superhero” is that they do things that most normal people cannot do.  They have super strength, x-ray vision, speed, determination… My “Christian” is a superhero.  As I write this he is lying asleep in his...