by cazmac9910 | Jun 20, 2013 | 2Bros, inhibitors, target joints
“Christian’s” knee has been swollen since January. Bleed after bleed early this year and it just never seems to get back to a “normal” size. He has needed to depend on his wheelchair more than I have liked, but when his...
by cazmac9910 | Jun 10, 2013 | 2Bros, inhibitors, Living Life, ports;
“Christian” has been fighting his fear of needles. But when you are seven years old, nothing seems to make it “okay” that needles must be part of your life. We typically de-access his port on Saturday and access on Sunday...
by cazmac9910 | Jun 3, 2013 | 2Bros, complacency, hospitals, inhibitors, Living Life
Living with a bleeding disorder in this day and age, for the most part, can be managed well…if you plan well. Bleeds never happen at a “good” time and last Friday was a perfect example.”Christian” has been doing so well with no big...
by cazmac9910 | May 27, 2013 | 2Bros, Uncategorized
Fifty one years ago today a little soul left this world. His life was short and he struggled, but he lost his fight. He had hemophilia and back in 1962 in a rural, Texas town, hemophilia was not a disorder that brought a great deal of attention, so I...
by cazmac9910 | May 24, 2013 | 2Bros, Living Life, school
Remember when caller id was futuristic? I remember thinking how cool it would be if you could see who was calling before you picked up the receiver and if I would ever be in a world where you could make a phone call and see the person while you spoke...
by cazmac9910 | May 16, 2013 | 2Bros, inhibitors, Living Life, school
“Christian” finally made it to a field trip! His class went to a local park to fly kites and have a picnic and he didn’t have any issues. I am so glad he made this trip since he missed the previous three. The great thing about seven...
