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Great News!

I received an email from Webicina, a free service that curates medical social media resources and selects the most relevant ones focusing on various disease states, and my blog is one of their featured blogs on hemophilia!I would love your help to get to the top of...

The Playground

Last week I went to “Christian’s” Spring BBQ at the elementary (where 1st graders eat lunch at 10:45 am) 🙂  I sat with him and his friends and enjoyed some great conversation followed by the playground. The doors from the cafeteria opened and...

Embracing

Our family had a great vacation to Colorado.  My “Christian” did not have any bleeds, just a horrible cough, “Lance” had no issues and the most exciting part of the trip was that blizzard like weather hit in the middle of the week and we...

Ready for a Break

We have been enjoying a little respite from the craziness “Christian’s” inhibitor brings to our lives. His knee is doing much better, but is still swollen. I looked in his infusion log and the first knee bleed of the year started on January...

Another adventure

“Christian” returns to school tomorrow after yet another knee bleed.  He fell at school right after returning from a previous knee bleed and it started again.  He just never quite healed so we were cautious in sending him to school...