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Plans, plans

When you have a child with a bleeding disorder, making plans is almost funny.  It’s as if you are tempting fate and asking for a bleed to happen.We had planned on taking a few days to get away to Santa Fe (an hour away) to recharge and get ready for the New...

A Revelation…and a Shoulder Bleed

I took “Christian” to his play therapy appointment earlier this evening.  It went extremely well.  The therapist had him playing in a sand tray as she watched him and asked questions.  It was very humbling to hear her talk to him.  She...

Play Therapy…the Consultation

Our appointment with the play therapist went very well.  “Christian” really like her (especially the toys in the room).  The therapist spent our first session getting to know background about our family and Christian’s...

Catching Our Breath

On the Sunday after Thanksgiving “Christian” developed a nasty knee bleed….so much for making it through the holiday without incident :)The knee was not looking any better after a day and night of Q3 so we took him in to the HTC for a quick check and...

The Plan

Infusing is not going very well for my “Christian” right now.  He is fighting so hard because of his fear of needles and his father and I just cannot access him without help.  We have a plan in place.We will be going to the HTC on Wednesday...

Stepping Back

“Christian” has been doing well.  His ankle has recovered from the last bleed and he is running around being a typical six year old boy.This afternoon, while at the harvest festival at church, Christian was playing with one of his friends.  As I...