by cazmac9910 | Oct 13, 2012 | 2Bros, hospitals
Wednesday night was one of the worst nights of my life. My “Christian” came into the hospital due to an ankle bleed on Tuesday. We could not control his pain at home. His ankle bleeds are notoriously painful….just off the charts. ...
by cazmac9910 | Oct 11, 2012 | 2Bros, hospitals
My “Christian” has been in the hospital since Tuesday and in huge amounts of pain. He has been screaming in pain “My ankle, my ankle!” He’s now on a pump with continuous morphine flowing and he still cries out in pain. The measurement of...
by cazmac9910 | Oct 2, 2012 | 2Bros, ports;
I truly thought my “Christian” had turned the corner on his fear of needles. We’ve taken a few steps back.I completely lost it with him last night when he did not cooperate…not one of my better parenting moments, and when our homecare...
by cazmac9910 | Sep 26, 2012 | 2Bros, Living Life
This morning I went on the early school run and took “Lance” to school. When I returned, my husband was sitting on the stairs, a pool of blood drops at his feet and Christian was in tears. He tripped going up the stairs. Yes, going up the...
by cazmac9910 | Sep 17, 2012 | 2Bros, Uncategorized
“Christian” is starting Cellcept tomorrow. He was on it for a brief time with no problems, but the issue was that the doctor who started him on the treatment left the HTC and we never were able to see the result of a full run of the medication.We are...
by cazmac9910 | Aug 29, 2012 | 2Bros, Uncategorized
Our trip last week to the Denver HTC was great. They really do it right over there. Dr. Manco-Johnson and her team are absolutely top notch.Yesterday I received the call….inhibitor results. It’s 28. ARGH! I had a feeling it...
