by cazmac9910 | Aug 20, 2012 | 2Bros, Uncategorized
My “Christian” did a super job infusing Friday! He sat still and did not cry and wiggle 🙂 He was so proud of himself.I am looking forward to our trip to the Denver HTC this week. We’ll have a great check up, get his inhibitor level...
by cazmac9910 | Aug 7, 2012 | 2Bros, inhibitors, target joints
We just returned from the Inhibitor Summit in San Diego, California. We had a great time 🙂 We made some new friends, heard a few very useful nuggets of information regarding hemophilia and inhibitors and even had an “ah-ha” moment regarding...
by cazmac9910 | Jul 27, 2012 | 2Bros, ports;
I hope it wasn’t a fluke, but my “Christian” sat completely still during his infusion on Monday! We had the iPad set up, he was playing, the Emla had been on for an hour and he was completely distracted. He said, “It didn’t...
by cazmac9910 | Jul 12, 2012 | 2Bros, complacency, inhibitors;hospitals
Last night “Christian” and I were on my bed having a tickle fest. All of a sudden he rolled off the bed and on his way down, hit the corner of my glass topped nightstand right between his temple and eye. I shot straight up, grabbed him and knew infusing...
by cazmac9910 | Jul 6, 2012 | 2Bros, Uncategorized
Well, my son is just absolutely terrified of needles. The visit with the nurse from our homecare did not go any better than when it’s just me and his Dad. To say he completely freaks out is an understatement. We just don’t know what to do...
by cazmac9910 | Jul 2, 2012 | 2Bros, ports; therapy
When you live in a rural area with little or no resources to back you up when living with a bleeding disorder, you handle things on your own and hope you don’t have to make the 2 hour drive to the HTC very often.Now that we are living in the big city (and not...
