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Gotta love those new teeth

Six year molars.  It’s been pretty messy.Waking up with bloody sheets and pillows always looks worse than it is, but it’s still not fun.  Fortunately, “Christian” is good about taking his Amicar and what really helps...

He Doesn’t Understand

My 15 year old, “Lance”, has been very fortunate in his journey with Severe Hemophilia.  He has never had a joint bleed, and has really only had one severe muscle bleed….ever.  He had a low titer inhibitor, one port placed and was immune...

Just in Time

We caught a bleed just in time.  “Christian” had another bleed into his right knee….that makes me nervous.  The last thing he needs is another target joint.  We are learning that the minute Christian makes the slightest complaint, we...

A Knee on the Mend

“Christian’s” right knee is finally on the mend đŸ™‚  He is moving it around without crying in pain and can straighten it more that it had been previously. I hate when my son has to be confined to bed.  You do everything you can to help them...

It Just Blew Up

“Christian” had been complaining of pain in his knee for severral days.  Last Friday we infused per our bleed protocol and over the weekend, all seemed well…until Monday.  We infused per a bleed again, I went to the school to give a second...

Familiarity

My “Christian” and I are in the infusion suite gettin an infusion of IVIG.  Hie immune system needed a little boost, so we will be out in a few hours.  As Christan says, “easy peasy lemon squeezie”.I really feel like the brace we had...