Select Page

All You Need

My “Christian” is starting to realize he is different.  Something happened at school this week that made him see that he can’t run as fast and far as the other kids.  When he came home from Denver with his new brace his entire class was...

Catching it Early

When I got the call from school that “Christian’s” ankle was bothering him after recess, I immediately went and infused him.  It was the end of the day, so I brought him home early.  The HTC recommended dosing with Novo every 2 hours....

So far, so good

The New Year has started rather quietly where hemophilia is concerned. So far, so good. We are trying to get to Denver to pick up “Christian’s” brace. I hope within the next two weeks we can get there.

All is Well

All is well.My “Christian’s” ankle bleed has finally resolved, a month later.  We have enjoyed our Christmas and are looking forward to the New Year as we begin with an inhibitor titer of 13!  The possibility of immune tolerance is actually...

The Best Thing We Ever Did

I took “Lance” and “Christian” to the HTC in Denver this past week.It was the best use of time and money I have ever put out.  My husband and I decided that the boys, especially Christian, needed another consult/opinion since our HTC in...

Big Improvements

It’s so nice to see my “Christian” walking again.  He is turning in his ankle quite a bit and is moving pretty slow, but he is managing to get where he needs to go (but resting on his own as well).  He actually was able to put his tennis...