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When You Wish…part 2

We are some tired puppies! Day two of theme parks completed! I was worried about “Christian” keeping up with his ankle problems, but so far so good. Roller coasters, simulated rides, Hogwarts…we are having a great time:) We sat down to dinner tonight...

When You Wish…Day 1

Did you ever wish upon a star? Maybe you looked up in the night sky, saw that special twinkle in the night, and wished for something…to be famous, for a new television, to have a talent like none other. Sometimes our wishes are big (maybe they even qualify for...

Maybe a Little Normalcy?

When you live with a bleeding disorder, is there ever “normal”? I mean, the minute you think about life going along without issue, a bleed happens, the port stops working, you run out of syringes…..etc. “Christian” is recovering from a bleed in...

The Saga Continues

On Tuesday evening, the second IV blew.It took six sticks/pokes to start a new IV. My “Christian” broke out because of nerves. He was so upset. I can’t believe I had left. My husband was there to take over, and I hate to say it, but part of me was...

Precautions

My “Christian” is doing very well. We have even move to every 12 hour factor infusions. His incision is healing and all looks great. The only problem is that he must keep an IV in until Friday. His veins are pretty torn up and traveling home, two hours...

Port #4

Surgery went very well. The hardest part this time was “Christian” coming out of the anesthesia. He was extremely agitated and would not stop crying. Finally, after some more pain meds and Benadryl, things calmed down and we made it out of recovery.I think...