by cazmac9910 | Jul 29, 2011 | 2Bros, inhibitors;hospitals
My day with “Christian” looked like this…..Left at 6:30 am for the Hemophilia Treatment Center (2 hour drive to Albuquerque)9:00 am appointmentThe hematologist accessed Christian’s port and we thought all was well (I was not able to access it the...
by cazmac9910 | Jul 19, 2011 | 2Bros, advocacy, inhibitors
We traveled to the Inhibitor Summit last week in San Francisco. It was probably one of the most stressful trips we have ever been on. “Christian” was having a slight soft tissue bleed in his hand as we were leaving town, our treatment center was not being...
by cazmac9910 | Jul 10, 2011 | 2Bros, Uncategorized
I received this email and wanted to pass it along. If you have personally experienced a joint bleed, this group is looking for you.It sounds like a worthwhile project.EMAILHi!I am interested in understanding more about the experiences of hemophilia. My company is...
by cazmac9910 | Jul 7, 2011 | 2Bros, inhibitors, insurance
We started our journey with Rituximab (an immunosuppresant) in the hopes of eradicating Christian’s inhibitor, back in the fall of 2009.I just received a letter from the insurance company stating that our treatment (Rituximab) in January of 2011 has been...
by cazmac9910 | Jul 3, 2011 | 2Bros, Uncategorized
The last two “July 4th’s”, my “Christian has been in the hospital getting a new port. He is on his third, so far so good. While there on the 4th, we have watched the fireworks from his hospital window…a fantastic show in Albuquerque. We...
by cazmac9910 | Jun 28, 2011 | 2Bros, intuition, target joints
“Christian’s” ankle has not been right. As he has been playing tee ball, it has been extremely obvious that he can’t run like the other kids. It has just broken my heart. He doesn’t seem bothered by it, but the truth is that he...
