by cazmac9910 | Sep 15, 2017 | 2Bros, Uncategorized
There have been seasons when hemophilia became the center of my family’s universe. A bleed would start and before it healed completely, it re-bled, or a new one began. Visits to the clinic for appointments, timed blood draws, unpacking factor and supplies,...
by cazmac9910 | Jul 5, 2017 | 2Bros, Uncategorized
I started blogging in 2006 out of loneliness. My family moved from Houston to a small town in New Mexico and one night I was completely overwhelmed by the fact that we actually moved! It was a good thing, but a little shocking because it happened in such a short...
by cazmac9910 | May 23, 2017 | 2Bros, Family
Whenever I have the chance to say my brother’s name, either aloud or on paper, I say it, “Ronaldo Julian Campos was born on May 23, 1962. He lived for five days and suffered a bleed in his brain. He had hemophilia.I still wonder how it is that...
by cazmac9910 | Apr 21, 2017 | 2Bros, Uncategorized
Today was day 10, the final day of transitioning my mighty warrior, Caeleb, from Advate to Alphanate. We started with 250 units of Alphanate and increased each day as we lowered the Advate. No problems!! No allergic reactions! We are at 5,000...
by cazmac9910 | Apr 12, 2017 | 2Bros, hospitals, inhibitors
I was in the clinic today with my mighty warrior. He is starting to transition from a recombinant Factor VIII to a plasma derivedFactor VIII. He has been doing well for a couple of years with very little bleeding, but his inhibitor is still around and his...
by cazmac9910 | Mar 30, 2017 | 2Bros, Uncategorized
Starting the journey down to the cavernsCatching our breathSpring Break 2017 is done. We traveled to the south of New Mexico to take in Roswell and Carlsbad Caverns, swung through El Paso and then to White Sands. We did a ton of walking in the...
