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Waiting and Healing

When things are out of your hands, what do you do? Wait.We are having to wait for Christian’s port to heal so that we can use it when we leave the hospital. Otherwise, we would not be able to infuse him when needed.Patience.Something my Dad had quite a bit of...

Hit Over the Head

I feel like I’ve been hit over the head with a 2 x 4.I am at Camp Sangre Valiente ( a camp for children with bleeding disorders and their siblings). I am so out of my element that it is almost too much to bear.The first day I wanted to run away! I am not...

Timing

In less than a week I will have a high school freshman!It absolutely blows my mind. I have friends my age that are already grandparents and my Christian is four!Isn’t it funny how God works in our lives?I couldn’t have imagined having Lance when I was...

Gray

We had the shortest hospital stay ever! Less than 24 hours! Yes, it was an exhausting day, but we are home. My Christian has an infection in his port, but we are on the road to treating it and we are home!There is something I noticed at the hospital. The parents of...

Holed Up

Today has been a wonderful day. My Christian and I have been “holed up” in a hotel room in Albuquerque. He has an MRI in the morning, so we stayed over the weekend. My husband and Lance came up and we hung out and had a great time.They left this morning,...

Hospital Moments

My Christian is in the hospital, again. He has an infection in his implanted port. It’s been a weekend of keeping my three year old entertained while being alone in the hospital.When you are in the hospital out of your hometown you have to manuever well. Did I...