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Never a Good Time

Bleeds never happen at very good times.When you are walking out the door….On test day….Right after you tell the HTC there have been no bleeds for months…2 am…Last night, my “Christian” started complaining that his ankle was hurting, sure enough the entire...

Nudges

The past two weeks have been pretty difficult. My depression has been rearing its ugly head, and it tends to do that during the Thanksgiving season. It’s one of my most favorite times of year, but also one of the hardest. On a recent Friday evening, I was not...

A Huge Realization

It was great to be back at the NHF Annual Meeting this year. We were not able to attend last year, so we have really been looking forward to Chicago. We had a great time, did lots of walking and enjoyed catching up with old friends and making new ones.My husband and I...

It Never Fails

Our family is preparing to travel to Chicago for the National Hemophilia Foundation’s Annual Meeting. And what happens? “Christian” is having a bleed in his left foot and is starting a nasty cough. It never fails that something happens as we are...

Spunky!

I had the privilege of speaking at the Sangre de Oro Family Education Weekend this afternoon. I was able to share my story of living with hemophilia as well as sharing about doubt and joy in living with a chronic condition.They were the spunkiest group of people I...