by cazmac9910 | Jul 20, 2023 | prayer, Life, ministry, transitions
The past few months have been a significant time of change. Change brings stress and can be overwhelming. I am glad that I am feeling good about my decision to move forward on another path in hospice chaplaincy. I am spending time evaluating what is important....
by cazmac9910 | Feb 19, 2016 | 2Bros, inhibitors, transitions
Caeleb has had a zero inhibitor titer for 15 months, but his half-life is just over 4 hours. It needs to be at least 6 hours to consider him “tolerized.” He’s doing great and we have to stay the course with big doses of Factor...
by cazmac9910 | Jan 28, 2016 | 2Bros, advocacy, Medic Alert, transitions
When you have a young “adult,” there are certain things you have to let go. Prophy is one thing. My 19 year old, Julian, believes prophy is not necessary since he always infuses when he feels something coming on. I finally had to let that...
by cazmac9910 | Nov 19, 2012 | 2Bros, Living Life, transitions
Infusing is not going very well for my “Christian” right now. He is fighting so hard because of his fear of needles and his father and I just cannot access him without help. We have a plan in place.We will be going to the HTC on Wednesday...
by cazmac9910 | May 11, 2012 | 2Bros, Living Life, transitions
My 15 year old, “Lance”, has been very fortunate in his journey with Severe Hemophilia. He has never had a joint bleed, and has really only had one severe muscle bleed….ever. He had a low titer inhibitor, one port placed and was immune...
by cazmac9910 | Sep 15, 2011 | 2Bros, Living Life, transitions
My “Christian” brought me a surprise from school…a pipe cleaner bracelet with five beads. I wear it proudly. Not just because my sweet boy made it for me, but because a year ago he could have beaded this pipecleaner. The nerve damage done by the...
