by cazmac9910 | Sep 19, 2014 | 2Bros, Uncategorized
My sweet “Christian” was admitted to the hospital Sunday night because his Dad and I just could not access his port. The next couple of days were filled with IV’s and a port that had a nasty rash on the outside. Last night the IV...
by cazmac9910 | Sep 4, 2014 | 2Bros, Uncategorized
To battle my “Christian’s” allergy to factor VIII, we are slowly increasing his dosage each month (in addition to 300 mgs. of Xolair every other week).Yesterday was another big day….he tolerated 750 units of factor VIII! It sure is a slow...
by cazmac9910 | Sep 2, 2014 | Oozing, Uncategorized
A four day weekend Cooking for my family An extra cup of coffee with my husband Sleeping in Loads of laundry to wash A picnic in the mountains Sunday morning worship Phone calls to a friend Packages in the mail Ice cold water Laughing with my family Today I am...
by cazmac9910 | Aug 25, 2014 | Oozing, Uncategorized
In our home we call our Thanksgiving meal our Thanksgiving “feast”. Every few weeks when we are craving good Mexican food I am summoned to prepare a Mexican “feast”. My family knows how to feast….it’s not a term we throw around lightly....
by cazmac9910 | Aug 15, 2014 | 2Bros, Uncategorized
In the world of inhibitors it is easy to get fixated on numbers. Inhibitor levels are measured in BethesdaUnits (titers) and it is just about everyone’s wish to be below 10. This is the level where most doctors target to get in order to start Immune...
by cazmac9910 | Aug 13, 2014 | Oozing, Uncategorized
I was stunned to hear about the death of Robin Williams. When I read that he committed suicide my heart broke. Honestly the first thing I thought was “How could he take his life? Surely he doesn’t ‘want’ for anything!” He had reportedly...
