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Argh!

Our trip last week to the Denver HTC was great.  They really do it right over there.  Dr. Manco-Johnson and her team are absolutely top notch.Yesterday I received the call….inhibitor results.  It’s 28.  ARGH!  I had a feeling it...

HTC this week!

My “Christian” did a super job infusing Friday!  He sat still and did not cry and wiggle 🙂  He was so proud of himself.I am looking forward to our trip to the Denver HTC this week.  We’ll have a great check up, get his inhibitor level...

Not any Better

Well, my son is just absolutely terrified of needles.  The visit with the nurse from our homecare did not go any better than when it’s just me and his Dad.  To say he completely freaks out is an understatement.  We just don’t know what to do...

Unsettled

I am so happy right now.  We are living in a beautiful home that we can breathe in, the boxes are unpacked, we live in the big city where we can get to whatever we need to get to quickly (especially the hospital) and our new church is just amazing. Why is it I am...

Being Dry

It is so hot! I am just thankful I don’t live in Houston anymore and have to deal with the humidity. I’ll take the dry heat here in New Mexico any day:) Since moving into our new home, I’ve not paid any attention to the plants in my backyard. I went...

Gotta love those new teeth

Six year molars.  It’s been pretty messy.Waking up with bloody sheets and pillows always looks worse than it is, but it’s still not fun.  Fortunately, “Christian” is good about taking his Amicar and what really helps...