by cazmac9910 | Apr 27, 2012 | 2Bros, Uncategorized
We caught a bleed just in time. “Christian” had another bleed into his right knee….that makes me nervous. The last thing he needs is another target joint. We are learning that the minute Christian makes the slightest complaint, we...
by cazmac9910 | Apr 13, 2012 | Oozing, Uncategorized
I am a huge advocate of devotional time. Having a daily time to either meditate, pray, journal, and simply take time for yourself, even if just for one minute, is critical to caring for yourself. But here is my problem…life takes over and gets in the way. I...
by cazmac9910 | Mar 30, 2012 | Oozing, Uncategorized
“Your presence is a unique gift to the world.” As I sat in the hospital with my “Christian” during his recent knee bleed, I started to think about the amount of time I was with him. I wanted to “work”, and I had my laptop and some papers, but I was only able to keep...
by cazmac9910 | Mar 27, 2012 | 2Bros, Uncategorized
“Christian” had been complaining of pain in his knee for severral days. Last Friday we infused per our bleed protocol and over the weekend, all seemed well…until Monday. We infused per a bleed again, I went to the school to give a second...
by cazmac9910 | Mar 19, 2012 | Oozing, Uncategorized
Don’t you just love it when all the pieces just fall into place? It’s like when you play Solitaire on the computer and you win…you get to see all of the cards move into place and the cards go crazy! I love the “crazy” part 🙂 We went to...
by cazmac9910 | Feb 24, 2012 | 2Bros, Uncategorized
My “Christian” is starting to realize he is different. Something happened at school this week that made him see that he can’t run as fast and far as the other kids. When he came home from Denver with his new brace his entire class was...
