I am having a hard time believing this nugget of inspiration right now.
I know that everything in our lives happens for a purpose. A purpose that may be easy to see during the event but often times it takes quite some time to understand the reasons why we go through certain trials and tribulations.
In this case the “No” we were given was regarding “Christian’s” treatment for his inhibitor (complication as a result of his hemophilia). Two different drugs were administered and both caused significant reactions in my sweet boy. We had been waiting for over six years for this treatment to start with the hopes of eradicating the inhibitor, and it looks like this will not be the path for treatment.
How can I possibly think that God’s best did not happen for my sweet Christian? Doesn’t the Creator of the Universe, the One who I put all my trust in, The Most High want my son to move forward the best way possible with his bleeding disorder?
I am not asking for God to “take the hemophilia away”, I am just asking for it to be a little easier in treating my son’s extremely painful, limiting bleeds. It is devastating to see him in pain.
I believe that I am a woman of faith…but even women of faith shake sometimes. I don’t like the feeling of defeat that I am feeling right now. I know that I have done everything I physically can for my son and would give my life for him, and I pray that the next chapter of battling this bleeding disorder will bring relief for my son.
Thank you, Father. I know that the best is yet to come.
Today I Am Thankful For:
1. late night flights
2. washer/dryers in hotels
3. hospital food
4. thinking ahead
5. ninjas
