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A Big Realization

Sometimes you just play the cards you have been dealt the best you can.  You don’t even know the difference.  For me I don’t know if I would know what to do if I had a child without a bleeding disorder!  Both of my sons are extremely...

Grabbing Hold

I am really good at beating myself up (not physically). If there was an Olympic sport for abusing oneself with doubt and criticism I would be a gold medalist. When it comes to building others up and motivating people to do their best at work or to find depth in their...

Love Like No Other

I adore my husband. We’ve been together 25 years but truth be told I didn’t know love in the deep, complete, overwhelming, crazy, passionate, selfless way that love can truly be until 18 years ago…when my oldest son was born. I knew my life would change,...

Relief

Four incisions and a week later and  port #5 is healing beautifully :)”Christian” developed a clot that has essentially become part of his body.  The surgeons tried to break it up and it just won’t budge.  Because of this issue...

Holding it Together

Holding it together is exhausting. Today my little boy had surgery and I had not “felt” anything. I knew this port placement was necessary, everything was in place, and we were moving forward. I had been moving on instinct and logic and my heart had not...

#5 Coming Soon

 I had trouble accessing “Christian’s” port last week (while his Dad was out of town).  What started as needing help accessing turned into a dye study to check placement and we learned that the port had coiled and developed a clot. I am...